News and events

Maxime: Living at home with a rare disease

For those who meet Maxime for the first time, there’s little that would tell them he lives with an extremely rare genetic disease. “He’s always happy,” says his dad Jasmin. “He’s the easiest baby—so curious and always wanting to look at everything.”

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Patient stories

I get so emotional thinking about it, but if it weren’t for the doctors, nurses and everyone who took care of us, he may not have made it,” says Robyn Schwartz about her third and youngest son Maxwell who is now 15 months old. At 20 weeks into her pregnancy, Robyn underwent a routine ultrasound that revealed her baby had a cystic malformation of the lung. +